Understanding PWS

Understanding PWS

PWS Resources Directory

Interaction has provided best-practice supports to people with PWS since 1992. We take a great deal of pride in sharing our knowledge and connecting you with leading experts in PWS. The following resources will assist you in learning more about PWS and the different supports available. If you have any questions, please contact use.

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What is PWS?

PWS is a rare and complex genetic condition affecting roughly 400,000 people worldwide. PWS is non-inherited, and linked to the deletion or incompleteness of genes on the 15th chromosomes.

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How Common is PWS?

PWS is a rare and complex genetic condition, affecting roughly 400,000 people worldwide (or 1 in 15,000 worldwide). Information on the prevalence of people with PWS is limited.

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Accessing Supports

Although research has come a long way, there is still no cure for PWS (PWS) and so much more to learn.  The complexity of a lifelong condition such as PWS mean there is a need for continued research.

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What Causes PWS?

PWS is a genetic disorder caused by errors or deletions of genes related to chromosomes 15. The exact mechanisms responsible for causing PWS are unknown, but the errors related to chromosome 15 impact the way genes are expressed, or how genes turn ‘on’ or ‘off’.

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What Are the Symptoms of PWS?

PWS presents with many symptoms that can affect a person’s physical, psychological, cognitive and behavioural development. While some symptoms are more common than others, we have outlined the more common symptoms that affect people with PWS below.

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What Is the Treatment for PWS?

While there is no ‘cure’ for PWS, early diagnosis and treatment can improve the health and wellbeing of people with PWS. Medical and lifestyle supports are essential to addressing the symptoms of PWS and can include the services of allied health professionals such as dieticians, physiotherapists and psychologists.

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